Leukemia Maintenance: Pain, ALT Levels High & Delays
Chester hasn’t been too bad this week, though he’s still talking non-stop about the Lamborghini he went in (if you didn’t catch that post, you can read it here!). This …
Journey
Chester’s Dream Day: A Ride in a Lamborghini Huracan
The other day Chester had, in his words, “the best day ever!” and that’s all thanks to a Lamborghini showroom down the road making his dream come true. It’s 100% …
Chester’s Update: Maintenance Treatment for Ph+ ALL
We’re now fully into the maintenance phase of the EsPhALL 2017/COG-1631 trial, as mentioned in our last update, so this is more of a quick recap of where things are …
A Change in NG Tube Policy Left Our Son in Distress During Childhood Cancer Treatment
We’re not asking for anything extra — just to stop Chester going through unnecessary trauma during an already tough cancer journey We wanted to share what’s been going on behind …
Final Stages of Intensive Chemo Treatment
Update The last time we updated this blog was back in November, and to be honest, life just got overwhelming. Chester became really unwell, and with him and the two …
High Dose Methotrexate Final Round
We finally made it to the week when Chester would go into the treatment hospital for his final round of High Dose Methotrexate. We were looking forward to getting it …
High Dose Methotrexate Round 3
When we started writing these blog posts, it was more about how Chester was getting on with his treatment, and it flowed easily. Now it has become very hard to …
Frontline Chemo (Intermin Maintenance) Weeks 4-7
It was time to return to our main treatment hospital on the Monday for Chester’s second round of high-dose chemo, the HD MTX. So as always, we arrived at the …
The First Phase of Frontline Chemo Weeks 1-3
Be warned, this post is a long one! The last couple of weeks have been quite stressful, as we have started the next phase of Chester’s chemotherapy. But the stress …
Leukaemia Chemo – Choosing The Next Phase For PH+All
So the last couple of weeks have just involved waiting on results and also doing lots of research and making hard decisions! But it has also allowed Chester’s body to …